University Center for Excellence in Developmental Disabilities

Advocacy

The following links provide information and resources for individuals with disabilities, their families, professionals and others who want to advocate with and on behalf of individuals with disabilities.

Organizations
Advocacy Resources

Organizations

Advocates for Justice and Education, Inc.
The Parent Information and Training Center and the Family to Family Health Information Center (F2F HIC) for the District of Colombia. Programs and supports to train parents in leadership and advocacy for people with disabilities.
http://www.aje-dc.org/

The Alliance For Full Participation
A partnership of organizations serving individuals with developmental disabilities to create more opportunities for people to lead full and quality lives within their community.
http://www.allianceforfullparticipation.org/

The Arc of DC
Educate and inform key policy makers about issues important to individuals with developmental disabilities.
http://www.arcdc.net/advoc.html

The Bazelon Center for Mental Health Law
Advocates to protect and advance the rights of adults and children who have mental illness and developmental disabilities. The website contains information and updates on current advocacy work, including the Blackman/ Jones lawsuit and special education in the District of Columbia.
http://www.bazelon.org/

DC Appleseed
DC Appleseed is an organization that “solves problems affecting the daily lives of those who live and work in the District of Columbia area -- from health care to voting representation to education reform to environmental concerns to jobs and housing.” www.dcappleseed.org. In late December 2006, DC Appleseed issued a book presenting a summary of the nearly 1,500 ideas submitted during Solving DC Problems Campaign 2006. You can e-mail info@dcappleseed.org to request a copy of the Solving DC Problems book or visit www.SolvingDCProblems.com to view the book online.

DC Center For Independent Living
Consumer, community-based organization to promote independent living. http://www.dccil.org/

DC Family EMPOWERment Center
The Family EMPOWERment Center provides the necessary organization and support to achieve three important objectives: Develop Family Leadership and Governance, Individual Support and Guidance, and Policy Development. The Center's activities are designed and operated to help families become effective advocates. For more information on this project see: http://www.dcqualitytrust.org/pages/page02c.shtml or contact the DC Family EMPOWERment Center at tfisher@dcqualitytrust.org or (202) 448-1450.

Family Voices, Inc.
Family Voices is a grass roots network of families, friends and advocates who work toward ensuring health care services for children and youth with special health care needs are family-centered, community-based, and comprehensive, coordinated and are culturally and linguistically competent. It supports partnerships between families and professionals to achieve their goals. http://www.familyvoices.org/

National Disability Rights Network
A national protection and advocacy organization for individual with disabilities. The website has information about different issue areas and contains resources and news about disability issues. http://www.napas.org/

Male Caregivers Advocacy Group (MCAS)
An advocacy group for men who take care of children with special needs. Provides training and support for advocacy for their children in the District of Columbia. Contact Cecil Doggette at 202-835-2771 for more information.
http://www.hscsn-net.org/node/29

Parents Advocacy Leaders Group (PALs)
PALs is a network for parents of children with special needs provides training and support to advocate for their children in the District of Columbia. Meetings are held once a month at the HSC Pediatric Center. Contact Cecil Doggette at 202-835-2771 for more information.
http://www.hscsn-net.org/node/29

Project ACTION
Self advocacy group of adults with developmental disabilities who advocate for the interests of residents with developmental disabilities of the District of Columbia and it's surrounding areas. Contact Rebecca Salon, Advisor (202-529-7600) or Phyllis Holton, Advisor (2020-448-1458) for more information.

Quality Trust for Individuals with Disabilities, Inc.
Advocacy organizations for people with developmental disabilities in the District of Columbia. Provides advocacy services, monitors the quality of services and ensures access to legal services. http://www.dcqualitytrust.org/pages/index.shtml

University Legal Services
Non-profit organization that is the District of Columbia's mandated protection and advocacy program for the rights of people with disabilities. http://www.uls-dc.org/PAP.htm

Advocacy Resources

Know Your Rights
University Legal Services Protection and Advocacy Program for the District of Columbia has a new set of resources in English and Spanish about the rights of people with disabilities around community integration, physical access, accommodations, service animals, voting and more. Click here to visit their webpage and join their on line group for parents and students with disabilities. http://www.uls-dc.org/What's_New.htm

Leaders in Self Advocate Stories
Bancroft Library at the University of California has a new collection of oral histories of leaders in the self-advocacy movement. There is also a collection on disability rights and independent living movement.

Family Advocating Through Letter Writing
The Parent to Parent organization in New York state developed this booklet with hints, suggestions or models for families to use when writing letters. It is designed to help families in accessing health care for children and advocacy. Many times families are asked to “Put your request in writing”; for the parents of children with disabilities this booklet helps on their journey to learning to advocate, learning to research and learning how to communicate with multiple systems.
http://hcbs.org/moreInfo.php/nb/doc/1814/Advocating_Through_Letter_Writing



	Home UCEDD Resources Advocacy Community Service Programs Employment Health Articles In My Own Words Information for Consumers & Families Información en Español Publications & Products Legislative Updates Links Meetings & Trainings Physical Activity Resources, A-Z CSPD: DC Early Intervention Portal Site Tools About Contact News Site Map	Advocacy The following links provide information and resources for individuals with disabilities, their families, professionals and others who want to advocate with and on behalf of individuals with disabilities. Organizations Advocacy Resources Organizations Advocates for Justice and Education, Inc. The Parent Information and Training Center and the Family to Family Health Information Center (F2F HIC) for the District of Colombia. Programs and supports to train parents in leadership and advocacy for people with disabilities. http://www.aje-dc.org/ The Alliance For Full Participation A partnership of organizations serving individuals with developmental disabilities to create more opportunities for people to lead full and quality lives within their community. http://www.allianceforfullparticipation.org/ The Arc of DC Educate and inform key policy makers about issues important to individuals with developmental disabilities. http://www.arcdc.net/advoc.html The Bazelon Center for Mental Health Law Advocates to protect and advance the rights of adults and children who have mental illness and developmental disabilities. The website contains information and updates on current advocacy work, including the Blackman/ Jones lawsuit and special education in the District of Columbia. http://www.bazelon.org/ DC Appleseed DC Appleseed is an organization that “solves problems affecting the daily lives of those who live and work in the District of Columbia area -- from health care to voting representation to education reform to environmental concerns to jobs and housing.” www.dcappleseed.org. In late December 2006, DC Appleseed issued a book presenting a summary of the nearly 1,500 ideas submitted during Solving DC Problems Campaign 2006. You can e-mail info@dcappleseed.org to request a copy of the Solving DC Problems book or visit www.SolvingDCProblems.com to view the book online. DC Center For Independent Living Consumer, community-based organization to promote independent living. http://www.dccil.org/ DC Family EMPOWERment Center The Family EMPOWERment Center provides the necessary organization and support to achieve three important objectives: Develop Family Leadership and Governance, Individual Support and Guidance, and Policy Development. The Center's activities are designed and operated to help families become effective advocates. For more information on this project see: http://www.dcqualitytrust.org/pages/page02c.shtml or contact the DC Family EMPOWERment Center at tfisher@dcqualitytrust.org or (202) 448-1450. Family Voices, Inc. Family Voices is a grass roots network of families, friends and advocates who work toward ensuring health care services for children and youth with special health care needs are family-centered, community-based, and comprehensive, coordinated and are culturally and linguistically competent. It supports partnerships between families and professionals to achieve their goals. http://www.familyvoices.org/ National Disability Rights Network A national protection and advocacy organization for individual with disabilities. The website has information about different issue areas and contains resources and news about disability issues. http://www.napas.org/ Male Caregivers Advocacy Group (MCAS) An advocacy group for men who take care of children with special needs. Provides training and support for advocacy for their children in the District of Columbia. Contact Cecil Doggette at 202-835-2771 for more information. http://www.hscsn-net.org/node/29 Parents Advocacy Leaders Group (PALs) PALs is a network for parents of children with special needs provides training and support to advocate for their children in the District of Columbia. Meetings are held once a month at the HSC Pediatric Center. Contact Cecil Doggette at 202-835-2771 for more information. http://www.hscsn-net.org/node/29 Project ACTION Self advocacy group of adults with developmental disabilities who advocate for the interests of residents with developmental disabilities of the District of Columbia and it's surrounding areas. Contact Rebecca Salon, Advisor (202-529-7600) or Phyllis Holton, Advisor (2020-448-1458) for more information. Quality Trust for Individuals with Disabilities, Inc. Advocacy organizations for people with developmental disabilities in the District of Columbia. Provides advocacy services, monitors the quality of services and ensures access to legal services. http://www.dcqualitytrust.org/pages/index.shtml University Legal Services Non-profit organization that is the District of Columbia's mandated protection and advocacy program for the rights of people with disabilities. http://www.uls-dc.org/PAP.htm Advocacy Resources Know Your Rights University Legal Services Protection and Advocacy Program for the District of Columbia has a new set of resources in English and Spanish about the rights of people with disabilities around community integration, physical access, accommodations, service animals, voting and more. Click here to visit their webpage and join their on line group for parents and students with disabilities. http://www.uls-dc.org/What's_New.htm Leaders in Self Advocate Stories Bancroft Library at the University of California has a new collection of oral histories of leaders in the self-advocacy movement. There is also a collection on disability rights and independent living movement. Family Advocating Through Letter Writing The Parent to Parent organization in New York state developed this booklet with hints, suggestions or models for families to use when writing letters. It is designed to help families in accessing health care for children and advocacy. Many times families are asked to “Put your request in writing”; for the parents of children with disabilities this booklet helps on their journey to learning to advocate, learning to research and learning how to communicate with multiple systems. http://hcbs.org/moreInfo.php/nb/doc/1814/Advocating_Through_Letter_Writing
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