University Center for Excellence in Developmental Disabilities
photo collage
To ListenAdvocacy

The following links provide information and resources for individuals with disabilities, their families, professionals and others who want to advocate with and on behalf of individuals with disabilities.

line

bullet Organizations

The Alliance For Full Participation
A partnership of organizations serving individuals with developmental disabilities to create more opportunities for people to lead full and quality lives within their community. http://www.allianceforfullparticipation.org/public/

The Bazelon Center for Mental Health Law
Advocates to protect and advance the rights of adults and children who have mental illness and developmental disabilities.  The website contains information and updates on current advocacy work, including the Blackman/ Jones lawsuit and special education in the District of Columbia  http://www.bazelon.org/

DC Appleseed
DC Appleseed is an organization that “solves problems affecting the daily lives of those who live and work in the District of Columbia area -- from health care to voting representation to education reform to environmental concerns to jobs and housing.” www.dcappleseed.org.  In late December 2006, DC Appleseed issued a book presenting a summary of the nearly 1,500 ideas submitted during Solving DC Problems Campaign 2006. You can e-mail info@dcappleseed.org to request a copy of the Solving DC Problems book or visit www.SolvingDCProblems.com to view the book online.

Advocates for Justice and Education, Inc.
The Parent Information and Training Center for the District of Columbia. Programs and supports to train parents in leadership and advocacy for people with disabilities.
http://www.aje-dc.org/

DC Family EMPOWERment Center
The Family EMPOWERment Center provides the necessary organization and support to achieve three important objectives: Develop Family Leadership and Governance, Individual Support and Guidance, and Policy Development. The Center's activities are designed and operated to help families become effective advocates. For more information on this project see: http://www.dcqualitytrust.org/pages/index.shtml or contact the Director DC Family EMPOWERment Center (202) 561-1991 Ext. 16 

Family Voices, Inc.
Family Voices is a grass roots network of families, friends and advocates who work toward ensuring health care services for children and youth with special health care needs are family-centered, community-based, and comprehensive, coordinated and are culturally and linguistically competent.   It supports partnerships between families and professionals to achieve their goals. Each state has a local Family Voices organization
National:
http://www.familyvoices.org/
Local: Family Voices of DC http://www.familyvoices.org/states.php?state=DC

National Disability Rights Network
A national protection and advocacy organization for individual with disabilities. The website has information about different issue areas and contains resources and news about disability issues. http://www.napas.org/

Project ACTION
Self advocacy group of adults with developmental disabilities who advocate for the interests of residents with developmental disabilities of the District of Columbia and it's surrounding areas. Contact Rebecca Salon, Advisor (202-529-7600) or Phyllis Holton, Advisor (2020-448-1458) for more information.

Quality Trust for Individuals with Disabilities, Inc.
Advocacy organizations for people with developmental disabilities in the District of Columbia. Provides advocacy services, monitors the quality of services and ensures access to legal services. http://www.dcqualitytrust.org/pages/index.shtml

University Legal Services
Non-profit organization that is the District of Columbia's mandated protection and advocacy program for the rights of people with disabilities. http://www.uls-dc.org/PAP.htm

bullet Advocacy Resources

Family Advocating Through Letter Writing
The Parent to Parent organization in New York state developed this booklet with hints, suggestions or models for families to use when writing letters. It is designed to help families in accessing health care for children and advocacy. Many times families are asked to “Put your request in writing”; for the parents of children with disabilities this booklet helps on their journey to learning to advocate, learning to research and learning how to communicate with multiple systems.
http://hcbs.org/moreInfo.php/nb/doc/1814/Advocating_Through_Letter_Writing

 

UCEDD footer
Home Advocacy Community Service Programs In My Own Words For Consumers and Families Informacion en Espanol Health Articles About Us News Site Map Georgetown University Center for Child and Human Development University Center for Excellence in Develpmental Disabilities Accessibility Copyright e-mail Legislative Updates Links Resources What's New Meetings and Training Physical Activity Publications and Products