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For
Families and Consumers
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 Many
of the resources on the UCEDD Web site include information
for families and consumers.
Highlighted
below are resources of special interest.
For additional information, also see on
this website:
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 Education
Working Together: A Parent’s Guide
to Parent and Professional Partnership and Communication
Within Special Education
This guide from PACER provides practical ideas for parents of children with disabilities
to improve their interaction with school staff and become more effective advocates
for their child.
http://www.taalliance.org/publications/pdfs/communicationbook.pdf
State of the Science Conference on Postsecondary
Education and Individuals with Intellectual Disabilities
A one day conference that focused on postsecondary
education for students with intellectual disabilities was held
in November 2009 in an effort shape federal efforts
to improve access to postsecondary education as envisioned
by Congress and made law as the Higher Education Opportunity
Act of 2008. The conference materials and findings are available
at http://www.sscsid.org/
Employment
Impediments to Employment and Job Retention for Individuals with Intellectual and Other Developmental Disabilities
The Georgetown University Center for Excellence in Developmental Disabilities Consumer Advisory Council Created a document on impediments to employment and recommendations to reduce barriers for individuals with intellectual and other developmental disabilities.
What Can You Do?: The Campaign for Disability
Employment
Resource for youth and adults with disabilities, educators,
and employers about how to prepare for and employ persons with
disabilities. Website has a video on how people with different
disabilities got quality, satisfying jobs.
http://www.whatcanyoudocampaign.org/
US Department of Justice and Hiring Individuals
with Disabilities
Listen (MP3
format) | Transcript (PDF)
(Ollie Cantos, member Attorney General's Committee for the
Employment of People with Disabilities, description of DOJ
hiring initiative).
Other resources on federal hiring
Disability.gov
Resources and information about employment, career planning,
work place supports and accommodations, self-employment,
work incentives, youth programs, and laws and regulations.
The
site has information on other topics as well as such as
civil rights, health, housing, technology, etc. http://www.disability.gov/employment
White House Employment Initiatives
In October 2009 the President Obama announced that his administration
is committed to ensuring people with disabilities have fair
and equal access to work. Click
here to read the press release.
District of Columbia Office on Disability Rights
This office has resources and information for employers and
employees, accomodations and laws and regulations. http://odr.dc.gov
District of Columbia Department on Disabilities
Services, Rehabilitation Services
Rehabilitation Services, Client Services Division provides
vocational services to assist persons with disabilities to
prepare for,
enter,
and
maintain
employment. Contact 202-442-8400 or click
here for more information.
U.S.
Office of Personnel Management Federal Employment
of People with Disabilities
This site has many resources on federal disability hiring
program, workplace accommodations, employment laws and frequently
asked
questions. http://www.opm.gov/DISABILITY/
Grief
About
Grief shares one
family's experience with grief and offers advice for overcoming
and finding hope and happiness. En
Español
Health
Health Care Reform and Individuals with Disabilities
A health care reform law called the Patient Protection and Affordable
Care Act (P.L. 111-148) was signed by President Obama March
23, 2010. To understand how
it will
affect
individuals
with
intellectual and other developmental disabilities and their
families, read the information on the following websites
The Arc
http://www.thearc.org/NetCommunity/Page.aspx?pid=1910
Association of University Centers on Disabilities (AUCD)
http://www.aucd.org/template/index.cfm
Read the law and track progress in Congress through the Library
of Congress
http://thomas.loc.gov/cgi-bin/bdquery/z?d111:H.R.3590:
White House
http://www.whitehouse.gov/Issues/health-Care
Information on H1N1 from the DC Department of Health and
CDC
Information and resources about how to keep healthy this flu season and updates
on the availability of the vaccine are now available on the DC Department of
Health website at http://doh.dc.gov/doh/cwp/view,a,1370,q,604320.asp
Center for Disease Control and Prevention (CDC) H1N1 Information
http://www.cdc.gov/H1N1FLU/
CDC H1N1 information for Special Groups
http://www.cdc.gov/h1n1flu/groups.htm
TheDesk.info: E-News Update on the Medicaid Reference Desk
Check out this exciting website where you can find information about Medicaid services in your state. http://www.thedesk.info is an accessible website about Medicaid for use by people with disabilities. The site has information posted about all fifty states and the District of Columbia.
The team that created this website is now in the process of updating information in each state to keep it current.
Institute
for Children’s Environmental Health, Learning
and Developmental Disabilities Programs
A group that works with
disability organizations, health professionals, researchers and
environmental health and justice groups to address the impact
of environmental pollutants on healthy brain development.
http://www.iceh.org/LDDI.html
Health Fact
Sheets Developed by UCEDD in English and Spanish
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Family
Food and Fitness
A family guide that has information about healthy eating, recipes, and activities.
For families with young children of all abilities
This guide provides
families with information about healthy eating and active lifestyles. It is our
hope that families will
use this knowledge to help them buy fresh food, prepare nutritious
meals, and have fun being active. We encourage families to
include their children while they shop for food, prepare
meals, and cook. Children who participate in cooking enjoy
eating and make healthier food choices. The manual includes
information about:
- Nutrition
Recommendations
- Food
Safety
- Meal
Planning and Preparation
- Budgeting
- Physical
Activity
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Heart- Healthy Home Cooking African American Style
A cookbook published by the National Institutes of Health, National Heart, Lung, and Blood Institute and the Office of Research on Minority Health with healthy recipes for families to make and share.
Fitness
Health Services for Children with Special Needs, Inc sponsors
Youth Athletic Programs (YAO) and Adapted Sports. Click
here for more information or http://hscsn-net.org/node/34
Kids Feeling
Fit Foundation, Inc
Non- profit organization that provides
scholarships for children 5-18 years to participate in personalized
exercise programs and improve their physical fitness. Scholarships
are based on need and for children living in the District
of Columbia and some surrounding Maryland and Virginia counties. http://www.kidsfeelingfit.org/
National
Center on Physical Activity and Disability
Types of activities and sports with adaptations for people
with a wide range of abilities and conditions. Also information
about
accessible parks and program listings by state.
http://www.ncpad.org
Organizations
on Developmental Disabilities (National and Local)
American Association on Intellectual and Developmental Disabilities (AAIDD)
The Web site of the. The organization promotes
policies, research and practices for people with
intellectual
and developmental disabilities. The site includes
events, publications, and
information
about laws.
http://www.aaidd.org
Administration
for Children & Families
The federal organization
website containing information about services for
families including those with children with disabilities.
http://www.acf.hhs.gov
Disabilityinfo.gov
Links to information of interest to people with disabilities,
their families, employers,
service providers
and many others.
http://www.disabilityinfo.gov
Family Caregiver Alliance (FCA) and the National Center on Caregiving (NCC)
The National Center on Caregiving (NCC) at Family Caregiver Alliance (FCA) issued its 2007 National Policy Statement earlier this year. The FCA’s National Center on Caregiving (NCC) works to set the national agenda and highlight priorities, policies, and federally-funded initiatives to support the estimated 44.4 million Americans who are family caregivers.
http://www.caregiver.org/caregiver/jsp/home.jsp
The Arc of
the United States
Organization of and for people with mental
retardation
and other related
developmental disabilities to improve support and services,
connect
families,
influence
policy and promote research and education in the
prevention of developmental disabilities.
http://www.thearc.org
Safety
Autism Safety Project
Autism Speaks started the Autism Safety Project which provides
first responders with information and guidelines for communicating
with individuals
with Autism Spectrum Disorder (ASD) in emergency situations.
One-page
fact sheets can be emailed or printed for distribution
to law enforcement, firefighters, emergency medical services,
and others.
DC Car Seat and Installation Workshops
Project Safe Child and the Safe Cribs Program sponsored by the The DC Police Department and the DC Department of Transportation are holding workshops on car seat installation every Tuesday from 10am- 3pm at Healthy Babies/Developing Families 801 17th St., NE.
Please see flyer for more information and contact information.
Click here for the flyer
Also see the Emergency
Preparedness Inforamtion on the Resources Page
Transportation
Personal experience and tips from a local family
in navigating transportation systems
for a young adults with developmental
disabilities. En
Español
Volunteerism
Serve DC
Serve DC is the Mayor's Office on Volunteerism in the District
of Columbia. The office has an initiative to increase involvement
of individuals a with disabilities in volunteer efforts. The
Office has a Disability Inclusion Committee. For more information
see http://www.serve.dc.gov/cncs/site/default.asp and
http://www.serve.dc.gov/cncs/cwp/view,a,3,q,557658,cncsNav,|31027|.asp
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