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Information for Consumers and Families

Many of the resources on the UCEDD Web site include information for families and consumers. Highlighted below are resources of special interest. Advocacy Education Employment Grief Health Fitness Organizations on Developmental Disabilities (National and Local) Safety Transportation Volunteerism For additional information, also see on this website: Links for Families Resources Publications

Grief

About Grief shares one family's experience with grief and offers advice for overcoming and finding hope and happiness. En Español

Health

Health Care Law and Individuals with Disabilities
A health care reform law called the Patient Protection and Affordable Care Act (P.L. 111-148) was signed by President Obama March 23, 2010. To understand how it will affect individuals with intellectual and other developmental disabilities and their families, read the information on the following websites

Association of University Centers on Disabilities (AUCD)
http://www.aucd.org/template/page.cfm?id=274
White House
http://www.healthcare.gov/
Read the law and track progress in Congress through the Library of Congress
http://thomas.loc.gov/cgi-bin/bdquery/z?d111:H.R.3590:

Flu
New immunization information about seasonal flu vaccine from the Center for Disease Control and Prevention
Flu.gov has new information for the new flu season

TheDesk.info: E-News Update on the Medicaid Reference Desk
Check out this exciting website where you can find information about Medicaid services in your state. http://www.thedesk.info is an accessible website about Medicaid for use by people with disabilities. The site has information posted about all fifty states and the District of Columbia.
The team that created this website is now in the process of updating information in each state to keep it current.

Health Fact Sheets Developed by UCEDD in English and Spanish

Family Food and Fitness A family guide that has information about healthy eating, recipes, and activities. For families with young children of all abilities This guide provides families with information about healthy eating and active lifestyles. It is our hope that families will use this knowledge to help them buy fresh food, prepare nutritious meals, and have fun being active. We encourage families to include their children while they shop for food, prepare meals, and cook. Children who participate in cooking enjoy eating and make healthier food choices. The manual includes information about: Nutrition Recommendations Food Safety Meal Planning and Preparation Budgeting Physical Activity

Heart- Healthy Home Cooking African American Style
A cookbook published by the National Institutes of Health, National Heart, Lung, and Blood Institute and the Office of Research on Minority Health with healthy recipes for families to make and share.

Fitness

Health Services for Children with Special Needs, Inc sponsors Youth Athletic Programs (YAO) and Adapted Sports. Click here for more information or http://hscsn-net.org/node/34

National Center on Physical Activity and Disability
Types of activities and sports with adaptations for people with a wide range of abilities and conditions. Also information about accessible parks and program listings by state.
http://www.ncpad.org

Organizations on Developmental Disabilities (National and Local)

American Association on Intellectual and Developmental Disabilities (AAIDD)
The Web site of the. The organization promotes policies, research and practices for people with intellectual and developmental disabilities. The site includes events, publications, and information about laws.
http://www.aaidd.org

Administration for Children & Families
The federal organization website containing information about services for families including those with children with disabilities.
http://www.acf.hhs.gov

Disabilityinfo.gov
Links to information of interest to people with disabilities, their families, employers, service providers and many others.
http://www.disabilityinfo.gov

Family Caregiver Alliance (FCA) and the National Center on Caregiving (NCC)
The National Center on Caregiving (NCC) at Family Caregiver Alliance (FCA) issued its 2007 National Policy Statement earlier this year.  The FCA’s National Center on Caregiving (NCC) works to set the national agenda and highlight priorities, policies, and federally-funded initiatives to support the estimated 44.4 million Americans who are family caregivers.  
http://www.caregiver.org/caregiver/jsp/home.jsp

District of Columbia Office of Disability Rights
This office of the Government of the District of Columbia ensures that all activities operated or funded by the DC government are fully accessible and usable for people with disabilities. Visit their website for a full description of their services http://odr.dc.gov/DC/ODR

The Arc of the United States
Organization of and for people with mental retardation and other related developmental disabilities to improve support and services, connect families, influence policy and promote research and education in the prevention of developmental disabilities.
http://www.thearc.org

Safety

Autism Safety Project
Autism Speaks started the Autism Safety Project which provides first responders with information and guidelines for communicating with individuals with Autism Spectrum Disorder (ASD) in emergency situations. One-page fact sheets can be emailed or printed for distribution to law enforcement, firefighters, emergency medical services, and others.

DC Car Seat and Installation Workshops
Project Safe Child and the Safe Cribs Program sponsored by the The DC Police Department and the DC Department of Transportation are holding workshops on car seat installation every Tuesday from 10am- 3pm at Healthy Babies/Developing Families 801 17th St., NE.
Please see flyer for more information and contact information.
Click here for the flyer

Also see the Emergency Preparedness Information on the Resources Page

Transportation

Personal experience and tips from a local family in navigating transportation systems for a young adults with developmental disabilities. En Español

Volunteerism

Service Learning
Service learning is becoming a common method to teach students citizenship, volunteerism, responsibility, and job skills. Often children with disabilities are overlooked for participation in this important teaching method. The National Service Inclusion Project (NSIP) has resources about how to include service learning for school-aged children with disabilities. http://www.serviceandinclusion.org/

Integrating Service Learning in Individualized Education Programs (IEP) for Primary and Secondary Students with Disabilities
The Corporation for National Community Service and the National Service Inclusion Project have created a resource about including service learning in students' individual education programs (IEP) to improve learning and transition goals. Available at http://www.nationalserviceresources.org/practices/17600

Serve DC
Serve DC is the Mayor's Office on Volunteerism in the District of Columbia. The office has an initiative to increase involvement of individuals a with disabilities in volunteer efforts. The Office has a Disability Inclusion Committee. For more information see http://www.serve.dc.gov/cncs/site/default.asp and http://www.serve.dc.gov/cncs/cwp/view,a,3,q,557658,cncsNav,|31027|.asp