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CSPD: DC Early Intervention Portal
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Any links to external websites provided on this site are covered under Georgetown University's links disclaimer. This list is not intended to be comprehensive; rather, it offers a sample of quality sites that are useful starting points for those interested in the following topics: |
Associations,
Administrations and Organizations
Local Associations, Centers and Organizations
The District of Columbia Department on Disability Services (DDS)
The mission of the DDS is to provide innovative, high quality services that enable people with disabilities to lead meaningful and productive lives as vital members of their families, schools, workplaces and communities in every neighborhood in the District of Columbia. http://dds.dc.gov/DC/DDS. DDS is the lead agency for both the DC Developmental Disabilities Adminstration (DDA) and the Rehabilitation Services Adminstration (RSA).Developmental Disabilities Councils
D.C.Developmental Disabilities Council
http://dhs.dc.gov/dhs/cwp/view,a,3,q,492383,dhsNav,|30989|.aspMaryland Developmental Disabilities Council
http://www.md-council.orgVirginia State Developmental Disabilities Council
http://www.vaboard.orgFor other state Councils on Developmental Disabilities See Administration for Children and Families, US, Department of Health and Human Services
http://www.acf.hhs.gov/programs/add/states/ddcs.htmlDistrict of Columbia Office of Disability Rights
This office of the Government of the District of Columbia ensures that all activities operated or funded by the DC government are fully accessible and usable for people with disabilities. Visit their website for a full description of their services http://odr.dc.gov/DC/ODRDC Department of Human Services
This is the District of Columbia Government department that administers the social service programs for residents of DC that need income, health care, food, family service, rehabilitation and disability related help. http://www.dhs.dc.gov/dhs/site/default.asp211 Answers, Please
The DC Department of Human Services phone or online service for local and national social service information. Follow the links or dial 211 on your phone to get information about access to food, medical care, and government services and programs. http://answersplease.dc.gov/answersplease/site/default.asp
Office of the State Superintendent of Education” (OSSE) On June 12, 2007, this office became the agency that has authority in the for all federal child and nutrition programs in District of Columbia. This includes the early childhood education, child care, early intervention and special education among others. They also house the State Board of Education. The website contains information on all the programs including the new education plan. http://osse.dc.gov/
Early Childhood Education
This DC agency supports child care in DC for children 5 and under, provides access to before and after school care for children 12 and under and manages the subsidized child care program. http://osse.dc.gov/service/early-childhood-educationDivision of Special Education
This office of OSSE is working with the DC Public Schools and Charter schools in the city to put into places improvements to the special education program to meet the needs of all students with special needs. http://osse.dc.gov/service/special-educationDC Early Intervention Program
The early intervention program in the District of Columbia is for children birth to three who have delays in development or disabilities regardless of income. Provides evaluations, services and Individualized Family Service Plans (IFSP). See the website for eligibility and referral information. http://osse.dc.gov/service/dc-early-intervention-program
DC Department of Health
This department provides many health related services for DC residents including health care services for the uninsured, programs for mothers and children and assistance with accessing immunizations http://doh.dc.gov/doh/site/default.aspDC Public Schools
Public school system for the District of Columbia. The website features a page on the Office of Special Education and Early Stages center for referring young children over the age of three who may have developmental delays or disabilities. http://dcps.dc.gov
DCPS Office of Special Education
Provides evaluations, Individual Education Programs (IEP) and services for school aged children with special needs.DCPS Early Stages (formerly known as the CARE Center)
DCPS's child find initiative and part of the Office of Special Education. Children three to five years old are screened and if necessary, evaluated for delays or disabilities that would require special education services. http://www.earlystagesdc.org/
DC Child and Family Services Agency
This agency provides child protective services, foster care and adoption programs in the District of Columbia. Information about becoming an adoptive/foster parent or reporting child abuse and neglect can be found on the home page. http://cfsa.dc.gov/DC/CFSAGallaudet University's Laurent Clerc National Deaf Education Center shares the concerns of parents and professionals about the achievement of deaf and hard of hearing students in different learning environments across the country. The Clerc Center has been mandated by Congress to develop, evaluate, and disseminate innovative curricula, instructional techniques and strategies, and materials to improve the quality of education for deaf and hard of hearing children and youth from birth through age 21.
http://clerccenter.gallaudet.edu/Georgetown University Center for Child and Human Development
The mission of Georgetown University Center for Child and Human Development is to bring together policy, research and clinical practice for the betterment of individuals and families, especially children, youth and those with special needs including: developmental disabilities and special health care needs, mental health needs, young children and those in the child welfare system.
http://gucchd.georgetown.edu/George Washington University, Graduate School of Education and Human Development, HEATH Resource Center
A national clearing house on post secondary education of people with developmental disabilities. HEATH disseminates information on educational support services, policies, procedures, adaptations, and opportunities at American campuses, vocational-technical schools and other post secondary training entities. They have an newsletter, sponsor training events, have information on pre-college programs and financial aid information.
http://www.heath.gwu.edu
National Associations, Centers and Organizations
American Association of People with Disabilities (AAPD)
Works with many of the disability organizations for enforcement of the disability non-discrimination laws. The website has resources and information on membership.
http://www.aapd-dc.orgThe Association of University Centers on Disabilities
This association promotes and supports the national network of university centers on disabilities, which includes University Centers for Excellence in Developmental Disabilities Education, Research, and Service (UCEDD), Leadership Education in Neurodevelopmental and Related Disabilities (LEND) Programs and Developmental Disabilities Research Centers (DDRC).
http://www.aucd.orgAdministration on Developmental Disabilities (ADD)
US government organization responsible for implementing the Developmental Disabilities Assistance and Bill of Rights act of 2000. It is part of the Administration for Children and Families of the US Department of Health and Human Services.
http://www.acf.hhs.gov/programs/addAmerican Occupational Therapy Association (AOTA)
http://www.aota.org
National association for the profession of occupational therapy. Consumer information page: fact sheets and information about what occupational therapy is, fact sheets about issues across the life span, how to find an OT, ethical standard, etc.American Physical Therapy Association (APTA)
National association for the profession of physical therapy. Has several sections of the association including geriatrics, orthopedics, pediatrics, women’s health that contain consumer information on various topics. The link to the sections is located under APTA Communities, Chapters & Sections. Open the section of interest.
http://www.apta.orgAmerican Speech-Language-Hearing Association (ASHA)
National Association for speech-language pathologists and audiologists. Has a section for the public about speech-language services, hearing and balance, health insurance and others.
http://www.asha.orgAmerican Academy of Child and Adolescent Psychiatry (AACAP)
Professional medical association for treating mental, behavioral and developmental disorders in children and adolescents. The site contain information for families and service providers about current issues, medications, policy and legislation. http://www.aacap.org/index.wwThe Arc of the United States
A national organization that advocates for the full participation of all people with mental retardation and other related developmental disabilities. This site has a publications section with English and Spanish publications and a newsletter. It also has information on health related issues like DD and aging, Alzheimer’s, and women’s health.
http://www.thearc.orgThe Arc of DC, Inc.
The local association of the Arc provides services and programs for people with intellectual and developmental disabilities in the District of Columbia. The website also contains information on advocacy and policy.
http://www.arcdc.net/Community Living Exchange Collaborative
This site contains information and clearing house of resources and publications on topics related to community living.
http://alliance.unh.edu/clec.htmlInstitute for Educational Leadership
Non-profit organization that brings together organizations and individuals interested in solving educational problems. They train leaders, support parents and inform people to improve educational policies, including those for people with disabilities.
http://www.iel.org/index.htmlInstitute for Family Centered Care
Organization that provides information and resources for families, service providers, educators and administrators about are interested in advancing the practice of family centered care. http://www.familycenteredcare.orgInstitute on Community Integration
A center dedicated to improving community services and social supports for persons with developmental disabilities and their families in the in the US and abroad. They house programs for people of all ages and include early childhood, school age, transition and adult and community living information and resources. This center is a University Center for Excellence in Developmental Disabilities at the University of Minnesota.
http://ici.umn.eduInternet Resources for Special Children (IRSC)
Has a list of links by category for resources and information about a wide variety of developmental disabilities effecting children.
http://www.irsc.orgNational Center for Cultural Competence
Resource for health and mental health programs to design and provide services in a manner that is culturally and linguistically competent.
http://www11.georgetown.edu/research/gucchd/nccc/index.htmlThe National Direct Service Workforce Resource Center Website
Launched by CMS, the center provides information and assistance to state and local governments, policy makers, researchers, employers, workers and consumers. The Resource Center offers a comprehensive on-line database, information through a toll-free telephone number, and individualized, in-depth technical assistance for selected State Medicaid Agencies. Visit the site for best practices and other materials to increase the quality of the workforce and enhance recruitment and retention. http://www.dswresourcecenter.orgNational Dissemination Center for Children with Disabilities (NICHCY)
Links to states and their resources including the District of Columbia
http://www.nichcy.org/stateshe/dc.htmNational Federation of the Blind
National membership organization of people with blindness. This site contains resources and information about vision loss.
http://www.nfb.org/nfb/Default.aspNational Association of the Deaf
National membership association for people with hearing loss and deafness. This site has information and resources about deafness.
http://www.nad.org/National Association for the Dually Diagnosed (NADD)
This organization has information, events, publications and resources for consumers, families and service providers around issues related to mental wellness and mental health care for persons with intellectual and developmental disabilities.
http://www.thenadd.orgNational Association of Councils on Developmental Disabilities
The Web site of the NACDD, whose mission is to promote national policy which provides individuals with developmental disabilities the opportunity to make choices regarding the quality of their lives and be included in the community; and to provide support and assistance to member Councils. http://www.nacdd.orgNational Center on Educational Outcomes
The Web site of the NCEO, which provides national leadership in the identification of outcomes and indicators to monitor educational results for all students, including students with disabilities. http://education.umn.edu/NCEONational Home Of Your Own Alliance
A center at the University of New Hampshire dedicated to improve and increase access to accessible, integrated and affordable housing for people with disabilities. The site has information and resources about obtaining housing.
http://chance.unh.eduOffice of Disability Employment Policy
U.S. Department of Labor office that develops and provides information and resources about employment and employment policies affecting people with disabilities.
http://www.dol.gov/odepRehabilitation Research and Training Center on Aging with Developmental Disabilities
A national resource for researchers, planners, providers, self-advocates, families and students in the field of aging and developmental disabilities. Provides information, resources and research related to aging and developmental disabilities. Also has information on training and events.
http://rrtc.tecsinc.com/
Education
and Early ntervention
Gallaudet University's Laurent Clerc National Deaf Education Center shares the concerns of parents and professionals about the achievement of deaf and hard of hearing students in different learning environments across the country. The Clerc Center has been mandated by Congress to develop, evaluate, and disseminate innovative curricula, instructional techniques and strategies, and materials to improve the quality of education for deaf and hard of hearing children and youth from birth through age 21.
http://clerccenter.gallaudet.edu/National Early Childhood Technical Assistance Center (NECTAC)
Supports the implementation of the early childhood provisions of the Individuals with Disabilities Education Act.
http://www.nectac.org/
Brain Injury Services, Inc.
Offers case management services for children and adults as well as other programs to support individuals with brain injury in the Northern Virginia area. This site also contains information about brain injury and disability, advocacy and transportation links.
http://www.braininjurysvcs.org/index.aspCenter for Disease Control and Prevention
This Center is part of the US Department of Health and Human Services. It's web page contains information specifically on developmental disabilities which can be found at: http://www.cdc.gov/ncbddd/dd/default.htm.
In addition, the site contains information on specific disabilities like autism and cerebral palsy. They also have an Autism and Developmental Disabilities Monitoring Network (ADDM) which is found at http://www.cdc.gov/ncbddd/autism/addm.htm.Disability and Health: Promoting Health and Well Being of People with Disabilities 2005
US Department of Health and Human Services, Center for Disease Control and Prevention publications about disability and health including a new Disability and Health State Chart Book 2006 and Promoting Health and Well-being of People with Disabilities 2005. This web site also contains information sections about women and individuals from racially, ethically, linguistically and culturally diverse groups with disabilities.
http://www.cdc.gov/ncbddd/dh/
National Technical Assistance Center for Children's Mental Health
The National TA Center for Children's Mental Health is located within the Georgetown University Center for Child and Human Development in Washington, D.C.. Since 1984, the Technical Assistance Center has been dedicated to working in partnership with families and many other leaders across the country to transform services for children and adolescents who have, or are at risk for, mental health problems and their families.
http://gucchd.georgetown.edu/programs/ta_center/RRTC: Health & Wellness
Rehabilitation Research and Training Center on Health and Wellness is funded to conduct research and training to support the health and wellness of people with long term disabilities. http://www.healthwellness.org/Social Security Income (SSI) and Social Security Disability Insurance (SSDI)
This is a list of links that explains SSI and SSDI and the sites included one with a screening tool.http://www.ssa.gov/disability
http://www.socialsecurity.gov/ssi/
http://www.ssa.gov/pubs/11000.html
http://www.ssa.gov/dibplan/index.htm
http://www.ssa.gov/planners/index.htmWomen'sHealth.gov
A department in the US Department of Health & Human Services that provides information and resources about women’s health issues. This site contains a section on illness and disability under the health topics section that has information on issues and access to health care for people with disabilities, aging and disability and more links.
http://4women.gov/topics.cfm
Georgetown University Center for Child and Human Development
The mission of Georgetown University Center for Child and Human Development is to bring together policy, research and clinical practice for the betterment of individuals and families, especially children, youth and those with special needs including: developmental disabilities and special health care needs, mental health needs, young children and those in the child welfare system.
http://gucchd.georgetown.edu/Art and Drama Therapy Institute, Inc.
Day treatment program for people with intellectual and developmental disabilities in Washington, DC. The institute approaches care and treatment for adults with mental retardation through the visual and theatrical arts.
http://adtinet.comCatholic Community Services
Catholic Community Services provides services for children, youth and adults with developmental disabilities in the District of Columbia and Prince George's and Montgomery Counties in Maryland.
http://www.ccs-dc.orgDC Coalition for Community Services
Organization to promote community-based services for people with disabilities in the District of Columbia. For more information contact Arthur Ginsberg (aginsberg@sjcs.org or 202-274-3460) or Ron James (rjames61953@yahoo.com or 301-602-2228).District of Columbia Center for Independent Living (DCCIL)
Provides independent living skills training, peer counseling, advocacy and legal, and information and referral services for people with significant disabilities in the District of Columbia.
http://www.dccil.orgEaster Seals: Greater Washington Baltimore Region
An organization that provides services for children and adults with disabilities and special needs. The site has information about services for adults and children in centers, homes and in the community.
http://www.easterseals.comNational Children’s Center
An organization in the District of Columbia that provides services for children and adults with developmental disabilities.
http://www.nccinc.orgSt. John’s Community Services
Provides community-based services to children and adults with disabilities for people in the District of Columbia and surrounding ares.
http://www.sjcs.org/
Autism Society of America
Grass roots organization dedicated to increasing public awareness about autism and the issues individuals with Autism face.
http://www.autism-society.org/site/PageServerDC Chapter
http://209.200.89.252/search_site/chapter_detail.cfm?program_id=20803Best Buddies
An organization that promotes friendships and employment for people with intellectual disabilities. The programs include matching programs for people from middle school to senior citizens to create one-on-one friendships.
http://www.bestbuddies.orgFamily Voices, Inc
Family Voices is a grass roots network of families, friends and advocates who work toward ensuring health care services for children and youth with special health care needs are family-centered, community-based, and comprehensive, coordinated and are culturally and linguistically competent. It supports partnerships between families and professionals to achieve their goals.
http://www.familyvoices.org/The Family Village
A website for children and adults who have disabilities their and families. This site has different resources organized into a village theme. The library contains many resources about specific disabilities. It also has resources about assistive technology, laws and rights, special education and recreation/leisure activities. The site is kept by the University of Wisconsin-Madison Waisman Center. http://www.familyvillage.wisc.edu/index.htmlxFederation for Families for Children’s Mental Health
National organization run by families dedicated to helping children with mental health needs and their families achieve a better quality of life.
http://www.ffcmh.org/Institute for Family Centered Care
Organization that provides information and resources for families, service providers, educators and administrators about are interested in advancing the practice of family centered care. http://www.familycenteredcare.orgLearning Disabilities Society
Non-profit volunteer organization dedicated to creating opportunities for success for all individuals affected by learning disabilities and to reduce the incidence of learning disabilities in the future. http://www.ldaamerica.org/Our Kids
A WWW page devoted to raising kids with special needs run by a parent of children with disabilities. The site also links families, care givers and service providers to resources and a list for discussion. http://www.our-kids.orgSibling Support Project
This is a national project to peer support and information to siblings of people with special needs and to provide information for parents and providers about sibling issues. The site provides information on workshops, a list serve for siblings, stories by siblings and other support.
http://www.siblingsupport.org/
The Guided Tour, Inc.
Travel services for persons with developmental and physical challenges.
http://www.guidedtour.comSpecial Olympics International, Inc.
An organization that provides fitness and sports programs for children and adults with intellectual disabilities. They also host international competition for the athletes.
http://www.specialolympics.orgSprout!
This organization is based in New Your City, but provides programs for individuals with intellectual and developmental disabilities around the US to participate in leisure and travel experiences. They provide group vacation and other leisure programs.
http://www.gosprout.orgDisability Travel and Recreation Resources
A web page about information for people with disabilities and their families put together by a man with a disability. This page of the website offers travel links and information.
http://www.makoa.org/travel.htmUS Department of Homeland Security, Transportation Security Administration (TSA) section on travelers with disabilities has more information.
http://www.tsa.gov/travelers/airtravel/specialneeds/index.shtm
Yachad, The National Jewish Council for Disabilities. NJCD strives to enhance the life opportunities of people with special needs and to insure their participation in the full spectrum of Jewish life.
http://www.njcd.org/The National Catholic Partnership on Disability (NCPD).
The NCPD was established in 1982 to further implementation of the 1978 Pastoral Statement of U.S. Catholic Bishops on People with Disabilities, which calls for full inclusion of all persons with disabilities in the Church and in society. The NCPD site has news, information and resources and presents Catholic perspectives on disability issues. http://www.ncpd.org/American Association on Intellectual and Developmental Disabilities, Division of Religion and Spirituality
Interfaith resources and information about supporting people with developmental disabilities in their spiritual and religious lives.
http://www.aaiddreligion.org
Assistive Technology Program for the District of Columbia
This link has information about the Assistive Technology program for people of all ages that live in DC. The program is managed by University Legal Services (ULS). The program includes an assistive technology lending program, is developing an equipment recycling program and provides assistive technology evaluations and services.
http://www.atpdc.org/Data base on assistive technology and cognitive disability
A new assistive technology database by the Coleman Institute for Cognitive Disabilities at the University of Colorado allows users to search over 600 citations of research pertaining to technologies used by persons with intellectual and developmental disabilities by keyword, author name, journal, category of assistive technology, and other fields. Visit http://www.colemaninstitute.org/database.php to access the database.Center for Applied Technology (CAST)
Research and development of technology to enhance all individuals’ opportunities to learn through universal design for learning
http://www.cast.orgNational Instructional Materials Accessibility Standard (NIMAS)
Produces and distributes digital versions of textbooks and other instructional materials through electronic means so that they can be made into accessible formats for learners.
http://aim.cast.org/Quality Indicators for Assistive Technology Services
This is the website for a group of service providers, families, and researchers that identify, disseminate and implement the Quality Indicators for Assistive Technology in school settings. This process and tool can support the identifying, determining and implementing of assistive technology for children attending school.
http://natri.uky.edu/assoc_projects/qiat/DO-IT at the University of Washington
The Home Page for DO-IT (Disabilities, Opportunities, Internetworking and Technology) at the University of Washington, whose long-term goal is to increase the participation of individuals with disabilities in science, engineering, and mathematics academic programs and careers.
http://www.washington.edu/doit
Integrating Service Learning in Individualized Education Programs (IEP) for Primary and Secondary Students with Disabilities
The Corporation for National Community Service and the National Service Inclusion Project have created a resource about including service learning in students' individual education programs (IEP) to improve learning and transition goals. Available at http://www.nationalserviceresources.org/practices/17600DC Transition.org Pathways to the Future for Youth with Disabilities
Future planning resources for youths with disabilities transitioning to adulthood in the District of Columbia. The site has stories from youth about their experiences .Adolescent Health Transition Project
The Center on Human Development and Disability at the University of Washington has this website that provides information, timelines and resources on educational and health transitions for childhood through adulthood.
http://depts.washington.edu/healthtr/DSCC Transition Information and Resources
This site has information, resources, links, and timelines for families about health care transitions for children and youth to adults.
http://internet.dscc.uic.edu/dsccroot/parents/transition.aspHealth Care Transitions
This site contains information about the Health Care Transition Initiative of the Institute for Child Health Policy at the University of Florida. It contains information, resources, and research about the changing health needs of people with disabilities and special health care needs as they go through life.
http://hctransitions.ichp.edu/
Healthy and Ready to Work
This site is put up though the Maine State Title V Children with Special Health Care Needs Program and is supported by the Maine Support Network’s Center for Self Determination, Health and Policy. Has information on health care and health transition for people with disabilities and special health care needs.
http://www.hrtw.org/Health Transitions: Moving from Pediatric to Adult Health Care
This interactive website is for youth with developmental disabilities ages 14-25 years, family caregivers, service coordinators, and health care providers. Here you will find skills and tools for care coordination, keeping health summary, and setting priorities during the transition process. http://www.healthytransitionsny.comInternet Resources for Families of Children with Disabilities
Contains resources on educational transitions and youth to adult transitions.
http://www.supportforfamilies.org/internetguide/transition.htmlKeeping it Real: How to Get the Supports You Need for the Life You Want
A curriculum available through the Elizabeth M. Boggs Center on Developmental Disabilities to teach high school students with disabilities how to get, evaluate and manage the supports they need. It also has companion Parents’ Module, Teachers’ Guide, and Budget Basics and is available in Spanish. The first copy is free and can also be downloaded from the website.
http://rwjms.umdnj.edu/boggscenter/products/prod_info.htm#KIRNational Center on Secondary Education and Transition
This site contains information on preparing for and transitioning to post-secondary education for youth with disabilities.
http://www.ncset.org/default.aspNational Dissemination Center for Children with Disabilities (NICHCY) Transition Guides
Information on transition from childhood to adulthood for people with disabilities.
http://www.nichcy.org/transitn.aspNational Early Childhood Technical Assistance Center (NECTAC) Clearinghouse on Early Intervention and Early Childhood. Publication on Transitions for Infant Toddler Services to Preschool Education—Minibibliography.
This pdf document has abstracts or short descriptions of articles about transition as well as links to some of the articles directly.
http://www.nectac.org/pubs/titlelist.asp#transition
Job Accommodation Network
A service of the Office of the Disability Employment Policy of US Department of Labor to assist in the employment and retention of workers with disabilities. The site provides information on job accommodations, self employment and small business ownership for workers and their families as well as employers.
http://janweb.icdi.wvu.edu
DC Aging and Disability Resource Center
Provides information about long term care and other services for adults over 60 and persons with intellectual and physical disabilities. See http://dcoa.dc.gov/DC/DCOA/ADRC/ for more information.
