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 Publications
This list
presents current, high quality publications or links to publications
that are useful starting points for those interested in the
following
topics:
 New Products
 Beyond Forest Haven
The District of Columbia was one of the first jurisdictions in the country to close its institution for people with intellectual and developmental disabilities. This DVD and companion study guide look back at the history of the closing of Forest Haven and the journey to build a better life in the community for individuals with developmental disabilities. To order, click here to download the order form.
Move Experience Engage
 An exciting new publication that is a calendar of 365 activities designed to be used by individuals providing services to adults with developmental disabilities in community-based residential facilities. It includes a variety of fun and engaging activities like exercises, cooking and community activities that will help promote health and a sense of well being. A list of exercises and photographs illustrating the exercises is also included.
Early
Intervention
 A
Resource Guide for Professional Development
Annotated
Bibliography of Early Intervention Web Sites
Early
Intervention Personnel Preparation Training Activities
Family
Activity Brochures
Health
District
of Columbia’s Health Resources Partnership
Provides services and supports for people with intellectual
and developmental disabilities in the District of Columbia
to access
and receive health and mental health services. Has a list of
publications on health and health related issues.
http://www.dchrp.info
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Family
Food and Fitness
A family guide that has information about healthy eating, recipes, and activities.
For families with young children of all abilities
This guide provides
families with information about healthy eating and active lifestyles. It is our
hope that families will
use this knowledge to help them buy fresh food, prepare nutritious
meals, and have fun being active. We encourage families to
include their children while they shop for food, prepare
meals, and cook. Children who participate in cooking enjoy
eating and make healthier food choices. The manual includes
information about:
- Nutrition
Recommendations
- Food
Safety
- Meal
Planning and Preparation
- Budgeting
- Physical
Activity
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Health
Fact Sheets Developed by UCEDD in English and Spanish:
Health and Wellness for Individuals with Disabilties: An Annotated Bibliography of On-Line Resources
Individuals with disabilities are interested in attaining and maintaining a healthy lifestyle. Participating in physical exercise and activity, maintaining good nutrition, managing stress, and creating social supports are important to promote health and wellness. Finding appropriate activity, wellness, and health promotion information that pertains to their unique needs can be challenging for individuals with disabilities, their families, and service providers. This document health and wellness information specifically geared for people with disabilities.
http://www.gucchdgeorgetown.net/ucedd/documents/Connie%20Johnson's%20Annotated%20Bib%203-07.pdf
Beyond Referral: Pediatric Care Linkages To Improve Developmental Health
A publication by the Commonwealth Fund that reviews the current state on how pediatric health care providers link young children and families to developmental services and supports.
http://www.cmwf.org/usr_doc/Fine_beyondreferralpediatriccarelinkagesimprovedevelhlt_976.pdf
 Medicaid
Eligibility
Fact
sheet on Medicaid eligibility and citizenship released by
the US Department of Health & Human Services, Centers for
Medicare & Medicaid Services.
The
Medicaid Prescription Drug (PDF;
64 KB), Improvement, and Modernization Act of 2003 (P.L.
108-173) gives elderly and disabled people on Medicare
access to drug coverage beginning in 2006. This is a
fact sheet prepared by The Henry J. Kaiser Family Foundation.
Family
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The
National Center for Cultural Competence Policy Brief:
Cultural and Linguistic Competence in Family Supports
This Web document addresses the issues of cultural and linguistic competence
in providing family supports to children and youth with special health care needs
and their families. Numerous vignettes illustrate the policy issues. In addition,
links within the document connect the reader with more in-depth information in
the form of PowerPoint slides.
This
document is
available on the NCCC website. |
Liptak
GS, Orlando
M, Yingling JT, et al. 2006. Satisfaction with
primary health
care received by families of children with developmental
disabilities. Journal of Pediatric Health Care 20(4):245-252.
Abstract available.
Similar
article at http://www.hmnews.org/article2324.html (aging
issues of adults with developmental disabilities)
Assistive
Technology
 The
Consortium for Children and Youth with Disabilities and Special
Health
Care Needs was
a multi-center research effort that included the Georgetown
University Center for Child and Human Development, the Heller
School at Brandeis University, the Institute for Child and
Health Policy at the University of Florida and Family Voices. Although
the Consortium is no longer active, many of the products
and publications they produced are good resources for families
and providers.
Below are
links to their publications about assistive technology.
Transitions
The
Consortium for Children and Youth with Disabilities and
Special Health Care Needs was
a multi-center research effort that included the Georgetown
University Center for Child and Human Development, the
Heller School at Brandeis University, the Institute for
Child and Health Policy at the University of Florida and
Family Voices. Although the Consortium is no longer
active, many of the products and publications they produced
are good resources for families and providers.
Below are
links to their publications about assistive technology.
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