A - Z Index: A B C D E F G H I J K L M N O P Q R S T U V W X Y Z

A

Accessibility and Mobility

Easter Seals Project Action
Bus stop accessibility assessment Toolkit and Bus Stop Check lists from Easter Seals Project Action which strives for accessible community transportation. The tool kit is available for download in pdf or text versions or print copies can be ordered for free.

United We Ride
This is the website for the Coordinating Council on Access and Mobility (CCAM) which is charged with coordinating efforts for human service transportation for individuals with disabilities and other citizens.  The website contains information about policies, resources, and emergency preparedness as it relates to transportation. 
http://www.unitedweride.gov/1_ENG_HTML.htm

Alzheimer's Disease
Tips for Caregivers for Individuals with Alzheimer's disease

Assistive Technology

What is assistive technology?

Steps for making decisions for assistive technology

Assistive Technology Support in the District of Columbia

• Assistive Technology Program for the District of Columbia (ATPDC)
• District of Columbia Assistive Resource Center (DCARTC) is collaboration of ATPDC and the DC Rehabiliation Services Administration to improve consumer access to assistive technology.

Assistive Technology Device Examples

• Communication
  AAC TechConnect
  Attainment Company
• Computer Access
  Jaws screen reader
  Eye tracking devices from EyeTech
  Hands free mouse from Smart Nav

Family Guides to Assistive Technology
Family Center on Technology and Disability http://www.fctd.info/
Family Information Guide to Assistive Technology and Transition Planning (English and Spanish)
Family Guide to Assistive Technology

Autism
Evaluating the effects of a structured program for adults with autism spectrum disorders and intellectual disabilities

B

Behavior

Coping Strategies of Adults with Mild Intellectual Disability for Stressful Social Situations

Functional Behavioural Assessment in People With Intellectual Disabilities
[Mental Retardation and Developmental Disorders]

Using Motivation Interviewing to Promote Patient Behavior Change and Enhance Health

Breast

Breast Cancer Screening Survey for Women with Disabilities

The American Association on Health and Disability (AAHD) is the recipient of a grant from Susan G. Komen for the Cure entitled, “Project Accessibility: Removing Barriers for Women with Disabilities”. The purpose of the grant is to increase accessibility of mammogram facilities in the DC Metro area. AAHD has developed a Breast Cancer Screening Women’s Survey to help gain a better understanding of what types of barriers are keeping women with disabilities from getting their mammograms. If you are a woman with a disability and reside in Washington, DC or the surrounding Metro areas (District of Columbia, Alexandria City, or Prince George’s, Fairfax, Loudon, Arlington or Prince William Counties). Please visit http://www.surveymonkey.com/s/G77ZLF3 to fill out the short survey.

Breast Health Care: Easy to Read, Easy to Understand (PDF) Brochure for individuals with intellectual and developmental disabilities about preventative care for breast health. Sponsored by the Susan G. Komen for the Cure Foundation and written by the National Office on Disability and Health, Chapel Hill, NC.

C

Caregiver Resources
Ask Medicare has a new set of resources for caregivers. This web site has a video of one family’s story, and highlights programs and resources improve a caregiver’s well-being. It also has a links to services available for caregivers and care recipients through the HHS Administration on Aging, HHS Centers for Medicare & Medicaid Services and other state and local programs. For more information visit the site at www.medicare.gov/caregivers

Celiac Disease
Physician Awareness of Celiac Disease: a need for further education

Cerebral Palsy
Cerebral Palsy: An Overview.Also available in full-text .pdf , click here.

Special supplemental issue of Developmental Medicine and Child Neurology devoted to adults with Cerebral Palsy edited by Dr. Laura Tosi from Children's National Medical Center

Community Participation

What's on City DC is a calendar of events in the District of Columbia that is a useful tool for planning community integration activities, promoting wellness in individuals with disabilities as well as encouraging independence.

D

Dementia
Pain Control for Individuals with Dementia and Intellectual and Other Developmental Disabilities

Diabetes
Dealing with Diabetes, Video Presentation for Individuals with Intellectual Disabilities (New Vision)


Developmental Disability
The Elizabeth M. Boggs Center on Developmental Disabilities
particularly the products section

• The Geese and the Peanut Butter Chocolate Ice Cream: The Grieving Gifts to the Lexington Street Community A Resource to Help Individuals with Developmental Disabilities and People Who Support Them Grieve the Death of Loved Ones, 2006, written by Melody A. Steinman; illustrated by Pat Schosser
• Why Does Medicaid Matter To People with Disabilities and Their Families, revised November 2005
• People with Disabilities and Social Security, January 2005
• Building Community Supports Training Guide 1994
  A four-module curriculum designed to assist a committee or task force working on community supports. Modules include (1) People with Disabilities; (2) Planning Individual Supports for Satisfying Lives; (3) Worshiping Together; and (4) Building a Community Resource Team. For order form, click here
  
• Keeping It Real: How to Get the Supports You Need for the Life You Want 2005. The companion Teacher's Guide (2006) was developed to help teachers understand how the curriculum can be modified for different learning styles, abilities and interests. Spanish versions of Keeping it Real and the Parent's Module are available from this web site.
• On the Road to Community Inclusion (1999) a first collection of real life stories and experiences written by direct support staff working with, and walking with, people with developmental disabilities as they build community connections in New Jersey; and the second volume, On the Road (Again) to Community Inclusion: It's About Time! 2000. For order form, click here.

Disability
Going Beyond Disease to Address Disability

The Centers for Disease Control and Prevention have published the 2006 Disability and Health State Chartbook: Profiles of Health for Adults with Disabilities. Click here for the report specific to the District of Columbia.
For all states, click here.

Down Syndrome
Health Care Management for Adults with Down Syndrome

 E

Early Intervention

Working Together: A Parent’s Guide to Parent and Professional Partnership and Communication Within Special Education
This guide from PACER provides practical ideas for parents of children with disabilities to improve their interaction with school staff and become more effective advocates for their child.
http://www.taalliance.org/publications/pdfs/communicationbook.pdf

Employment

See our webpage on Employment

Emergency Preparedness

Autism Safety Project
Autism Speaks started the Autism Safety Project which provides first responders with information and guidelines for communicating with individuals with Autism Spectrum Disorder (ASD) in emergency situations. One-page fact sheets can be emailed or printed for distribution to law enforcement, firefighters, emergency medical services, and others.

Emergency Check List
A helpful checklist for emergency preparedness for people with disabilities and persons aged 65 and older appears at the end of the newsletter.

Links:

• Inclusion Preparedness Center: Emergency Preparedness for People with Disabilities and other Vulnerable Populations works to ensure that all individuals are included in the development and implementation or emergency and disaster plans including evacuations and sheltering and consideration of the communication, transportation and medical needs of persons with disabilities, and other special populations. http://www.disabilitypreparedness.org/
   
• National Capitol Region Disability Preparedness Initiative is designed to implement a series of activities that will enhance ongoing UASI emergency planning in the National Capital Region by incorporating into it new preparedness planning for individuals with disabilities and other special needs.  Building an enhanced and sustainable preparedness and response capacity for the NCR should include the 20% of our fellow citizens who have disabilities that may limit their ability to hear or see warnings, to leave their home, or to care for themselves. The proposed activities will contribute to meeting UASI objectives. http://www.disabilitypreparedness-ncr.net/
   
• US Department of Transportation Emergency Preparedness and Individuals with Disabilities. The information on this site is intended to inform people with disabilities about the federal government’s efforts to work with the disability community around emergency preparedness. http://www.dotcr.ost.dot.gov/asp/emergencyprep.asp
   
• The Needs of People with Psychiatric Disabilities During and After Hurricanes Katrina and Rita: Position Paper and Recommendations, recently released by the National Council on Disability (NCD).
  http://www.ncd.gov/newsroom/publications/2006/peopleneeds.htm
   
• Saving Lives: Including People with Disabilities in Disaster Planning (NCD’s 2005 report)
  http://www.ncd.gov/newsroom/publications/2005/saving_lives.htm
   
• The National Organization on Disability has an Emergency Preparedness Initiative (EPI) for people with disabilities with links to research papers, products and services and video clips on the subject. http://www.nod.org/index.cfm?fuseaction=Page.viewPage&pageId=1

F

Falls

Fall Prevention, Assessment and Intervention for Falls, specifically for
Adults with Developmental Disabilities, by Victoria Lamb, Doctor of Physical Therapy student.

Center for Disease Control and Prevention Resources on Fall Prevention
Fall Prevention in Older Adults fact sheets and resources
Developing Community-based Fall Prevention Programs (PDF)
Home and Recreational Safety compendium of effective community-based interventions, brochures, podcasts, and community prevention programs

Fall Risk Assessment Guidelines
Fall Management Guideline in the National Guideline Clearinghouse, Agency for Healthcare Research and Quality
Resident Falls: Facts, Prevention, Responding, Tools & References

Family Support

Ahead of the Curve: Emerging Trends and Practices in Family Caregiver Support
Some states incorporate caregiver support services into their programs that serve older people or adults with disabilities; in other states, it is separate with distinct eligibility criteria. Because many states are increasing HCBS funding, policymakers and administrators have a strong interest in emerging trends. This report highlights three: caregiver assessment, consumer direction in family caregiver support services, and collaborations between the aging network and the health care system. http://www.hcbs.org/moreInfo.php/nb/doc/1597

Family Caregiver Support: State Facts at a Glance
The National Association of State Units on Aging (NASUA) in collaboration with the National Conference of State Legislatures (NCSL) and funded by the Administration on Aging, has just released a report that provides information by state about family caregivers, the state-level programs that serve them, and legislation introduced and enacted. State fact sheets from the report may be found on the NCSL website at http://www.ncsl.org/programs/health/forum/caregiversupport.htm

Fitness
Revised Nutrition Guidelines for Diabetes Prevention, Stress, Weight Control, Exercise

Information on the American Society for Testing Materials (ASTM) initiative on inclusive fitness equipment standards is available on the National Center for Physical Activity and Disability (NCPAD) website.

Flu
New immunization information about seasonal flu vaccine from the Center for Disease Control and Prevention
Flu.gov has all new season

G

Genetics
A new interactive web portal called Genetics Home Reference from the National Institutes of Health

Guardianship
DDS Policy and Procedures on Emergency and Urgent Care Guardianship. For further information, please contact Neha Patel at 202-730-1787 or neha.patel@dc.gov (from DCHAdvocate newsletter, 11/16/07).

H

Health, General

Bright Futures Health Promotion
A national health promotion initiative with information and resources for families, health and mental health providers and the community regarding infants, children and adolescents.
This website also contains Mental Health Tools for promoting Social and Emotional Development including What to Expect and When to Seek Help.

These are tools for families and providers around the social and emotional development of infants, children and adolescents. It addresses when and how to seek help when there are concerns.  Available in English and Spanish.
http://www.brightfutures.org/tools/index.html

Disability and Health Information
The Center for Disease Control & Prevention has a new page on their website about disability and health with many resources.http://www.cdc.gov/ncbddd/disabilityandhealth/people.html

TheDesk.info: E-News Update on the Medicaid Reference Desk
Check out this exciting website where you can find information about Medicaid services in your state. http://www.thedesk.info is an accessible website about Medicaid for use by people with disabilities. The site has information posted about all fifty states and the District of Columbia.
The team that created this website is now in the process of updating information in each state to keep it current.

The Data Resource Center for Child & Adolescent Health is available to search State and national health survey information for children and youth. It also contains a Medical Home Portal with information and resources on medical homes for children and youth.

Federal Resources on Disability and Health
As part of the Surgeon General’s call to action to improve the health and wellness of persons with disabilities, The US Department of Health & Human Services has complied a list of federal resources on disability and health which includes department websites for developmental disabilities agencies, aging and disability, the center on cast and access to health care as well as many others.
http://www.surgeongeneral.gov/library/disabilities/calltoaction/factsheetresources.html

The Maternal and Child Health Library at Georgetown University
Provides accurate and timely information including the weekly newsletter MCH Alert, resource guides, full text publications, databases, and links to quality MCH sites. Topics include children and youth with special health care needs, health promotion, injury prevention, mental health, nutrition, oral health, physical activity, school health, and program development. Provides access to Bright Futures health promotion resources, National Maternal and Child Oral Health Resource Center publications, and Healthy Start infant mortality prevention resources.
http://www.mchlibrary.info

Medical Library Association: Deciphering Medspeak
Webiste to help people understand medical terms
http://www.mlanet.org/resources/medspeak

Medical Home and Family-Centered Care
American Academy of Pediatrics has information and tools on providing family-centered care in medical homes. http://www.medicalhomeinfo.org/tools/family.html

Health Care

Affordable Care Act Updates: People with Disabilities and Serious Health Conditions: The Top 5 Things You Need to Know about the Affordable Care Act. http://www.hhs.gov/od/community/public/index.html

The Robert Wood Johnson Foundation's Commission to Build a Healthier America releases its recommendations to improve America's health.
Read the recommendations.

Handbook for Women with Disabilities. Hesperian, a non-profit publisher of books for community-based health care to promote health world wide. This on line book is easy to read and understand for a wide audience.

Health Care Management for Adults with Down Syndrome

The Consortium for Citizens with Disabilities (CCD) issued a set of principles on health care reform and individuals with disabilities.

The Surgeon General's Call to Action to Improve the Health and Wellness of Persons with Disabilities

Remaking American Medicine, a website with information about this new campaign to inspire and empower viewers, both members of the general public and health care professionals, to join in efforts to transform American health care.

Health Hazards

Learning and Developmental Disability Initiative (LDDI)'s updated and expanded fact sheet on Mental Health and Environmental Exposures, a 16-page PDF document, which was modified slightly on November 20, 2008 to include more information about endocrine disruptors. Also available is the Fact Sheet Summary.

Bed Bug Management from the District of Columbia Department of Health

Heat Stress

Extreme Heat: A Prevention Guide to Promote Your Personal Health and Safety
The Center for Disease Control and Prevention highlights important safety and health tips related to extreme heat conditions.

Signs of heat stress and prevention from the Occupational Saftey & Health Adminstration (OSHA)
English and Spanish

Heimlich Maneuver
Emergency technique for preventing suffocation.

Hospice Care
15 Important things to know about Hospice Care

Preventative Health
Preventive health recommendations for adults with mental retardation

Signs of a Heart Attack
PDF (88 KB) of this article

I

Intellectual Disability

The Renaming of Mental Retardation: Understanding the Change to the Term Intellectual Disability (pdf)

American Association on Intellectual and Developmental Disabilities (AAIDD)
Click here to find free access articles from 2005 and to view current issues of the journal.

Mental Retardation and Developmental Disabilities Research Reviews
Contains articles on diagnosis, treatment, and research into conditions affecting persons with developmental disabilities.

J

Journal

K

Kennedy Institute
Kennedy Institute's web site on bioethics and people with intellectual disabilities

Kidney
Chronic Kidney Disease: Why you play a crucial role

The Epidemic of Chronic Kidney Disease

Cortland Forum
PCP need to recognize, know when to refer and co-manage chronic kidney disease with nephrologists.
The team approach works best. The best treatment of CKD is accomplished with a multi-disciplinary approach built around
a close collaboration with nephrologists, but frequently requiring additional input of care from diabetologists, cardiologists, and
other specialists. The authors recommend that patients be referred for nephrology evaluation when GFR ranges between 60-30
Once GFR falls below 30, patients should receive regular nephrology follow-up.

L

Learning and Developmental Disability Initiative

Long Term Care Initiative in DC
DC Department on Aging has launched a Long Term Care Awareness campaign

M

Mamography

Mamography Perspectives:  "its Easier Said Than Done" Perspectives on Mamomography From Women With Intellectual Disabilities.

Medication
FDA Safety Changes: Coumadin and Seroquel

M.E.E. Calendar
The M.E.E. (Move * Experience * Engage) Calendar!
developed by occupational and physical therapists

365 fresh ideas for things to do! by Janet Thomas, Jamie Hall, Toby Long, and Rachel Brady

Mental Health

Mental Health Aspects of Developmental Disability
A multidisciplinary, peer-reviewed journal covering the diagnosis, treatment, and habilitation needs of persons with developmental disabilities. 

N

NADD
National Association for the Dually Diagnosed (NADD) has numerous resources.
To visit the website, click here. In particular, check out their online training opportunities.

Nutrition
Center for Science in the Public Interest – Nutrition Policy
Dietary Guidelines for Americans 2005
Nutrition and Diet Low-Carbohydrate Diets
Steps to a Healthier You

O

 

 

P

Pain
Articles available through Medscape (requires registration)

• Evaluation of the Revised Faces Pain Scale, Verbal Descriptor Scale, Numeric Rating Scale, and Iowa Pain Thermometer in Older Minority Adults
• Evolving Changes in the Chronic Pain Paradigm
• Principles of Effective Pain Management at the End of Life
• New Research Findings in Chronic Pain: An Expert Interview With Frederick W. Burgess, MD, PhD
• New Data in Breakthrough Pain, Neuropathic Pain and Low Back Pain from APS 2007: An Expert Interview with David M. Simpson, MD
• Trial of a New Pain Assessment Tool in Patients With Low Education: The Full Cup Test

Pain Assessment in in People with Dementia from Lippincott's Nursing Center.com

Pain Assessment and the Non-Verbal Patient Clinical practice recommendations published in Pain Management Nursing

Pain Assessment Scales

• Wong-Baker FACES Pain Rating Scale or FACES Pain Scale-Revised (FPS-R)
• Iowa Pain Thermometer Scale

Palliative Care
Palliative Care for Latino Patients and Their Families: Whenever We Prayed, She Wept (2009)
JAMA 

R

Radiology

Rights
Know Your Rights electronic newsletter and electronic discussion group provided by University Legal Services, the Protection and Advocacy Program for the District of Columbia. The information on the rights of individuals with disabilities is available in Spanish and English.

S


Sensational Ideas
SENSAtional Ideas for Adults with Developmental Disabilities

Suggested activities for all the senses, arranged in a checklist format to aid in documentation!
developed by occupational and physical therapists

by Janet Thomas, Jamie Hall and Toby Long

Sensory Processing
Sensory Processing in Adults with Developmental Disabilities: Is it Sensory or Behavior? Quicktime presentation now available! Powerpoint presentation with audio commentary from Janet Thomas, MEd, OTR/L, Occupational Therapist

Sexuality
Establishing criteria for sexual consent capacity.

Sexuality and people with intellectual disabilities: assessment of knowledge, attitudes, experiences and needs.

Sibling Support

Council for Exceptional Children, Siblings with Disabilities, Fact sheet

Social Strategies
Coping Strategies of Adults with Mild Intellectual Disability for Stressful Social Situations

Statistics
Disability and Health State Chartbook - 2006 Profiles of Health for Adults With Disabilities
by the Centers for Disease Control and Prevention

T

Transfers

Information about proper transfers from DC HRP transfer training by Kenda Kittrell, physical therapist
Proper Transfer Plan
Lifting Techniques

Transportation

Metro Access

MetroAccess Application

The Metro Office of Eligibility Certification has updated the MetroAccess application form for people with disabilities who are applying for paratransit service. Information about eligibility for paratransit and the Reduced Fare Program for People with Disabilities can be found on the Metro website at the following link: http://www.wmata.com/accessibility/metroaccess_eligibility.cfm

Application Form (PDF) Click here
Application Form (Word) Click here
For additional information, please e-mail questions to eligibility@wmata.com

Traumatic Brain Injury
Traumatic Brain Injury Resource Guide created by University Legal Services, the Protection and Advocacy Program for the District of Columbia

U

V

Vitamin D
The High Prevalence of Inadequate Serum Vitamin D Levels and Implications for Bone Health
Current Medical Research and Opinion by Jean-Yves Reginster via Medscape
see also Current Recommended Vitamin D Intake May Not Be Optimal CME/CE